Ava’s Story

We are eternally grateful for Haleigh’s Hope and will be a customer for life.  Finally… seizure freedom!

At only 2-and-a-half months Ava began having seizures, and by 4 months of age she was given the devastating diagnosis of CDKL5 (cyclin-dependent kinase-like 5), a rare genetic disorder caused by mutations in the CDKL5 gene on the X chromosome. Most children affected by CDKL5 suffer from seizures that begin very early in life. We soon began researching CBD oil and its effect on seizure disorders and settled confidently on Haleigh’s Hope. Recently, Ava’s doctor wanted to try epidiolex and, since it was covered by insurance, we decided to heed his advice. Within two days, the detrimental effects of the prescription were obvious.  Ava existed in a fog. We switched back to Haleigh’s Hope immediately and have remained grateful that we did.  It is the only thing that has provided us some freedom from seizures, while keeping Ava’s sparkling personality intact.
– Check out Ava’s page by going to Aspiring Ava